Comments for Eating SCD

Comment on Recipes by Paul Stocker

Paul Stocker — Thu, 09 Feb 2012 23:01:16 +0000

Dear A.McAllis,

Thank you for sharing your story. I’m glad to hear that the SCD is helping your husband. My recovery was similar in that the symptoms grew farther and farther apart until they disappeared. For me it took about four years, but if I remember correctly, the BTVC said that CD generally takes longer than UC.

-Paul

Comment on Recipes by A.McAllis

A.McAllis — Thu, 09 Feb 2012 21:17:29 +0000

Sunshine,
I don’t know if you ever check this since your post was about a year ago, but my husband has UC and was on prednizone and mesalamine (asacol) for several years and not getting better. He went off his meds in 2009 and last January we started following the “Breaking the Vicious Cycle” diet religiously – he is very very strict about it. We make yogurt using regular whole milk and he eats eggs and peanut butter – he is not well yet, but we have seen steady improvement. He uses the restroom usually once at night and once in the morning and his bleeding has stopped. Periodically he will have a flare with a little bleeding, but those seem to be getting farther apart. (His last rough month was October). We also got a water ionizing machine last November and he thinks that has helped as well. The main 2 symptoms we are facing right now are some diarrhea and gas in the evenings. I don’t know if that’s helpful or not, but we feel like it’s working and at least he is not having to take all the medications. “Breaking the Vicious Cycle” says that following this diet some UC patients have cleared their health in a year, but more typically it takes 2 years, and then you should follow the diet for another year to be sure and slowly try things added back into your diet.
My husband also saw Dr. Asa Andrews (his book started us on the trek to treat my husband’s illness naturally instead of with meds), and we were completely impressed with the cost and thoroughness of the drs. However, Dr. Andrews’ office is in Knoxville, TN so we have not been back.
Hope this is helpful. We don’t have a miracle story of a speedy recovery, but we are seeing progress.
A.McAllis

Comment on Resource by Paul Stocker

Paul Stocker — Mon, 30 Jan 2012 13:48:59 +0000

Adina,

I’m sorry you are having such a difficult time.

In the few instances I’ve read about people’s experiences with fecal transplant, it’s been a mixed bag. Some have great responses, others are disappointed. I hope it works like crazy for you.

-Paul

Comment on Resource by Adina

Adina — Sun, 29 Jan 2012 03:46:36 +0000

I watched some of your videos on youtube tonight wanted to say thanks for sharing your story. I have UC and have been doing SCD for 3 years with a few other experiments along the way. GAPS intro protocol several times, body ecology, guts and glory program. I have not been able to obtain remission and I keep being hospitalized. I have been on prednisone now for 6 months and I have finally decided to go on immuran. I am not ok with this but I have to get off the steroids. I am considering doing a DIY fecal transplant from a healthy donor. Everything I have read seems promising for re-establishing microbial balance. Thanks again for sharing so honestly.

Comment on UMass study supports IBD-AID diet for treatment of IBD by Paul Stocker

Paul Stocker — Tue, 24 Jan 2012 16:15:20 +0000

Gia,

Not being a Facebook pro, I couldn’t remember how it worked so I had to look it up. Here’s what Facebook’s own help page said:

For Closed groups, everyone on Facebook can see the group name and members, but only group members can see posts in the group. Unless you’re added to the group by another member, you’ll need to ask to join. You’ll become a member when your request is approved.

I’m presuming that you just haven’t heard back yet from the group’s owner, Kara Barkmeier Niewohner. If you still can’t get in after a day or two, let me know your name on Facebook and I can add you to the group, I think.

-Paul

Comment on UMass study supports IBD-AID diet for treatment of IBD by Gia

Gia — Tue, 24 Jan 2012 14:50:34 +0000

Paul,
I’d like to join the SCD Facebook group where you saw this study, but it is a closed group and no one has responded to my request to join. Do you know who to contact to be included? Thanks!

Comment on UMass study supports IBD-AID diet for treatment of IBD by Paul Stocker

Paul Stocker — Mon, 23 Jan 2012 22:13:27 +0000

Dawn,

Thanks for sharing.

I’ve always had mind to keep this blog SCD legal so whenever anything strays from SCD guidelines I want to clearly point it out. To wit: the IBD-AID diet is NOT SCD legal.

-Paul

Comment on UMass study supports IBD-AID diet for treatment of IBD by Anonymous

Anonymous — Mon, 23 Jan 2012 17:47:52 +0000

I got a reply! Here it is:

Hi Dawn!

Thank you very much for contacting us! I am glad to hear of your success with the SCD.

Currently, we customize the diet to the patient needs, so introduction is highly variable. The hardest part is the beginning, we have a teaching kitchen and patients do better if we can enroll them in a cooking class, where they EAT. This helps the psyche as well as increase skills with new foods and flavors.

When we are dealing with strictures, we need to be very careful of intact fiber, and we recommend foods to be pureed or blenderized.

I am currently in the process of completing a manual for the diet, which will be posted in several weeks when we launch our new website. I will be sure to contact you when that happens.

The basic summary is: gluten free, lactose free, sugar free. we DO allow oats (if tolerated) quinoa, and rice (if tolerated).

We also discourage hydrogenated oils, and limit saturated fat. Fish oil is also recommended along with probiotics.

Thank you. If you have any questions, please do not hesitate to contact me!

Gioia Persuitte, MPA
Research Coordinator
Department of Preventive and Behavioral Medicine
UMass Medical School
55 Lake Avenue, Worcester MA 01604
508-280-9034

Comment on Quick update 2012 by Paul Stocker

Paul Stocker — Sun, 22 Jan 2012 19:41:44 +0000

Rinne,

Workin’ on it!

-Paul

Comment on Quick update 2012 by Rinne

Rinne — Sun, 22 Jan 2012 18:13:44 +0000

This makes me so happy to hear! More recipes, please?