I previously have had commenting wide open. It worked fine for a long time, but now I’m getting so much spam that I’m requiring commentors to give a name and email. I don’t want your name and email, but I’m hoping that it will curb the amount of junk that fills up this blog and wastes my time.
My only other option is turning commenting off. That would be a bummer because it would eliminate the public back and forth that the silent majority can benefit from. Note that I’m still leaving my contact info in the sidebar if you want to avoid the blog commenting altogether.
-Paul
Eating SCD 
Hi Paul,
I am curious how you are doing now in 2015. I had a resection 2 1/2 years ago. I went in to an emergency surgery for a blockage and woke up with my ileum removed and 2 to 3 inches on either side. There was a fistula and a crohn’s diagnosis . Up to that point I just always seem to have stomach problems and bloating. The gastro doctor wanted to put me on humira. I opted not to do that and started the scd diet. I am thinking about a colonoscopy and of course and nervous about it. I saw your colonoscopy diaries and could relate. I don’t really want to hear that the diet is not working because I am not comfortable with the alternatives. I did read some about LDN in low doses. I feel good most of the time with occasional Constipation. or some bloating. Its not very often. I am just curious about how you are faring and how long you have been successful with the diet.
Thank you for sharing your experiences. It was a determining factor when I was doing my research on treatment options.
Lori Appleton
Texas
Hi Lori,
In short, I’m doing okay and not on the SCD. My CD is still active, but my biggest problem is my addiction to caffeine for the effect it has on the number of times I have to visit the loo. I do have some brief, occasional, minor pain. My terminal ileum is closed down to about 5mm and I expect to have a resection in the near future. How soon, I cannot tell. It could be years.
The SCD alleviated my symptoms, but the pathology of that long ago colonoscopy showed “active crohn’s”. I was discouraged, fell off the wagon and haven’t returned. My most recent colonoscopy and SBFT in the spring of 2014 showed the narrowing of my ileum to be “smooth” and lacking fistulas which, curiously, is consistent with what my GI would characterize as remission. He did not encourage me to take any meds at that time and I am currently not doing any treatments for Crohn’s.
Except for when I was a teenager, my CD has been mild and slow moving and except for eliminating symptoms, it has been difficult to determine what effect the SCD has had on my disease process.
What has become clear to me in recent years is that the word “remission” is a term of art. Different doctors will have different definitions. Both you and your doctor are CD professionals, but with potentially very different perspectives. The doctor’s challenge is to treat it. Your challenge is to live with it.
I’m sorry you are dealing with this. It can be very difficult.
Cheers,
Paul